22 April 2013 @ 09:09 pm
Things  
I've been (and am on) steroids for my head, which are finally (if slowly) starting to help. I'm also doing heavy -duty treatment for my various infections this summer, which is painful already. And it's just week one.

I'm not looking forward to any of this, except the end.

I don't know how it will affect my being online, but my knees seem to be the most painful part. So once my head is better, I think I'll be on much more. My amnesia is finally improving, too.

I'm grateful for all of you. Every last one. There are people not in my life any longer, but to be honest, I'm not sure I WANT any of them on my flist or in my life now. That said, for many of them, I'm grateful for the blessings they brought to my life while they were part of it.

And for those I'm just glad are gone, well, I still learned things -if the hard way -due to their presence. Like that someone can seem kind and still be poisonous, or that I don't have to go out of my way to make someone feel better when I know I didn't do anything wrong. I apologized far too often and when I should not have when I was younger, because I hated seeing others hurt.

I still hate seeing it. But I have enough respect for myself now to be able to review my actions, judge them, and accept that if there is truly nothing to apologize for, the best I can say is, "I'm sorry you feel that way, but I can't apologize for what I never said or did. "

I even reached the point where I was (am) able to say, "I care about you, but you owe ME an apology, and I don't want to associate with someone who would say that to me unjustly and not consider his/her actions or words when I say I'm offended. "

Sound simple? Yeah, but it took me a lot of work to get to this point. I joke about how being raised Catholic and attending Catholic schools made me great at guilt, but it's true, too. Being able to reach the place where I don't automatically think I'm in the wrong took a long time. I'm proud of it.

I'm also proud of a ton of the people I know, here and elsewhere. Some of them have amazed me in things they've done or ways they've grown. Batya, Mylia, Alex, Debi, Madb, Beth, Sara, Tanya, Michelle, Gavin-man, I've got to stop for the sake of my hands, but please don't think that because you're not included by name means you're not one of the people I'm thinking on. So many of you have done so much. I mean, in matters of personal growth, and in things you've done for others.

Money is so tight right now, especially with the increased treatments, that I can't buy gifts for people any longer. School costs rrequire huge loans on top of that, and I doubt my parents will ever be able to retire. I'm going to have to sell most of my things, as energy allows. But if I could, I would. I admire many of you, and value all of you.

Please remember that.
 
 
 
 
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to the stars eternal: narnia: a mundane life[personal profile] levitsa on April 23rd, 2013 01:53 pm (UTC)
I'd been hoping to hear an update from you soon. You were on my mind this week so I'm glad to see your meds are helping. <3
Rose[personal profile] fire_and_a_rose on April 24th, 2013 02:25 pm (UTC)
Hey, you. * hugs* I'm glad to hear from you, too.

I'm so glad that my head is improving. Still can't use the computer for long, but. Ten, fifteen minutes here and there is doable.

I'm especially glad that the uni's provost finally gave me an extension for my Chaucer course; I have a 12 page paper to do, and it was due May 1St. Now it's due August 1st. She didn't want to give me one, despite swollen brain, concussion, migraines, difficulty with vision, oh yeah, I was injured ON CAMPUS DUE TO THEIR DANGEROUS LAYOUT OF CONCRETE. (They also wouldn't help with the cost of any treatment, because I have health insurance. Except, gee, health insurance covers not so much everything.)

Thankfully, my mother took over the emails -well, she had to, I just couldn't do the computer to write them -and mom did not so much give up. So. That class will be done as soon as my head allows. I have the bad feeling, though, that I'm going to need another course of steroids; I started on six a day, and now I'm at five, and going down even one has made my head so much worse. And I HATE steroids -weight gain, jittery muscles, trouble sleeping more than a few hours at a time, and more -but the pain is so bad. My skull is too tight around my brain atm, though, and I just. I cannot deal with this pain.
to the stars eternal: historical: smokes in the field of war[personal profile] levitsa on April 24th, 2013 03:04 pm (UTC)
My god :/ Dealing only with minor migraines on a regular basis (and having had a minor concussion once), you have all my sympathy. All that plus everything else must be hellish for you right now. I think Chaucer is loads of fun and I hope that despite all your paper can turn out to be a fun thing, instead of a tedious thing, at least in places.

A couple major/minor changes has hit me since you could do longer internet bursts; I came out to my parents who are in the denial stage (I'm not trans*, I'm a lesbian! Whatever. I am actually more /gay/ than anything else but they refuse to accept I am male), I have an EDS diagnosis & am riding ups & downs with trying to treat it (latest symptom: mobile ribs! I can dislocate my ribs by lying down on my side, which is the only comfortable position to sleep in for my knee...), and I proposed to my girlfriend two weeks ago, so I'm now engaged. I've got a few more visits with specialists in the works which might change my pain profile in the near future, fingers crossed.

I'm so glad your mom is in your support corner. I'm in Charlottesville so I don't know if I can offer anything more than moral support and e-hugs, but you've got e-hugs from me in spades.